Posted on May 16, 2010 by DebCNY
As a mother, I think feeling guilty often comes with the territory. When dealing with discovering your child has a hearing loss – and you didn’t even know it for some time – these feelings can often surge up to al all time high. At least they did for me back in 2001, when we realized AC had a hearing loss.
As I mention on the “background page“, AC was probably born with mild/mod hearing loss, but, we didn’t know it until he was 4 years old. Once we were LOOKING for it, there were signs everywhere… but, up until that point, we really had NO clue.
This is an email I found that I had written to a friend back then… I thought Continue reading
Filed under: child hearing loss, diagnosed, early diagnosis, grieving, guilt, hearing aids, hearing loss, labeling, late diagnosis, mild hearing loss, moderate hearing loss, positive coping, stigma | Tagged: Hard of Hearing, hearing loss, stigma | 7 Comments »
Posted on May 11, 2010 by DebCNY
Posted on November 25, 2008 by DebCNY
The big brain on my son, that is… (my side ;) ).
I hope this doesn’t come off the wrong way… but, I am pretty psyched and wanted to share. We just got AC’s first report card from middle school today. He got strait A+’s!! . =) We’re so proud of him!!
I thought he was doing well… but, I wasn’t sure just how well.. and half expected to have at least one class or teacher that he might be having some problems with. So, when he called me today (obviously pretty pleased, himself) and he told me he made high honor roll – well, can you say “ecstatic?”. =) This was just wonderful news. =) A relief even. Like, “Whew! Maybe middle school won’t be so bad.” sorta feeling…
Filed under: 504 Plan, educational needs, FM, hearing aids, middle school, placement | Tagged: 504 Plan, child hearing loss, FM system, Hard of Hearing, hearing loss, mainstreaming, mild hearing loss, Moderate Hearing Loss, placement | 6 Comments »
Posted on November 13, 2008 by DebCNY
I want to share another thing I learned that blew me away in our “year of discovery” (when AC was in 3rd grade). Apparently, a lot of kids that are HOH get misdiagnosed as having ADD – Attention Deficit Disorder. AC was almost one of them. That was how we figured out he needed the FM and all – because his teacher started saying all these little negative “behavioral” things were happening. Things like many of the ones noted on this list from phonic ear. Check out the chart:
- Similarities Between Mild Hearing Loss & Attention Deficit Disorder
Maybe, this information is old news now… but, when I first heard this I had a HUGE “light-bulb moment”. I wish I had known this information BEFORE that point. So, maybe this will help someone else out there who’s just starting off with a child diagnosed with mild hearing loss.
At the time I discovered this (thru my OWN research) we were in the process of weeks of jumping through hoops.
Filed under: ADD, Behavioral, child hearing loss, educational needs, hearing loss, third grade | Tagged: ADD, Hard of Hearing, Hearing Disability, Hearing Impaired, hearing loss, mainstreaming, mild hearing loss | 18 Comments »
Posted on November 8, 2008 by DebCNY
There’s a beautifully written post by Michelle over at the “Say What Club” blog – entitled: “All That A Whisper Is“. Michelle is a mom who has severe hearing loss herself, and talks about how she could not hear whispers from her child. Please go read her post… it’s an inspiring read.
For me, it also gave me a glimpse to the other side. Because along with not hearing the “th, f, s, sh, sp, t, b, etc” silent consonants, it was my son who could not hear my whispers. I wrote this in response to her post:
great post… thank you for sharing that.
It reminded me that when I realized my son couldn’t hear whispers (he was 4 when we found out he had a mild-mod hearing loss)… and it suddenly made sense why when HE whispered something to me, he only moved his lips. He didn’t think you were SUPPOSE to say it out loud.. because, he could not hear us.
When I first realized that… I felt tremendously guilty… both, for not realizing why he only moved his lips… and, because I realized that for 4 years… I was always whispering sweet nothings in his ears… I love you’s… sssshhhhhh sounds when he was crying… and he never heard any of it…
I felt terrible about that… but, Continue reading
Filed under: child hearing loss, hearing aids, lip read, silent consonants, whispers | Tagged: Hard of Hearing, hearing loss | 4 Comments »
Posted on November 6, 2008 by DebCNY
Below is a letter I sent to a friend back in January 2001 – just after we had taken AC to his 4 yr check up, and at the advice of his Pre-K teacher, I mentioned that she thought his “speech was a little off”.
This captures the mood… and thoughts of that moment…
Date: 18 January 2001
I’m feeling a little scared..
I just had my son to the doctors office for his 4 year check up. AC is very healthy – but, I mentioned to her how his preschool teacher commented that his speech was a little difficult to understand sometimes. I knew this, but thought it was normal for his age. But, his doctor said his pronunciation is a little “lazy” for his age… and then we started questioning his hearing because he wouldn’t do the headphone hearing test earlier on in the visit. We tried to get him to do it again – and he either wasn’t hearing very well, didn’t understand what he was suppose to do, or he just didn’t want to do it.
So, his doc suggested I take him for a better evaluation to a hearing and speech center. I already made the appointment for 2/1. I never noticed or thought he had a hearing problem, but now I’m worried.
I was trying to test him myself today, and it did seem he had difficulty hearing me when I whispered or spoke in lower tones. It’s so hard to tell… and if he does have a problem, I can’t believe I didn’t notice before.
Filed under: child hearing loss, diagnosed, hearing aids, hearing loss, speech | Tagged: Hard of Hearing, hearing loss, mild hearing loss, speech evaluation | 6 Comments »